The mission of NORD is to improve the health and well-being of people with rare diseases by driving advances in care, research and policy. An educational scholarship for undergraduate students attending college/university in the US/Canada with dyslexia and/or auditory processing order. Program offers educational scholarships to people living with epilepsy or family members and caregivers of people with epilepsy. Program awards scholarship to select undergraduate students who have experienced the devastating loss of a parent or caregiver to suicide. webmaster. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. A scholarship for adults with rare diseases in a variety of educational pursuits regardless of treatment status. Program offers financial support scholarships for exceptional students living with a chronic inflammatory diseases. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to be used for college . El programa ofrece una beca para pacientes de 25 aos o ms con enfermedad renal o urolgica. The amount available varies year to year. This list includes both the main, and any alternate names for each disease. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Financial assistance grants for people under 21 without medical insurance to put towards diagnosis and treatment. Chronic, Serious or Life Threatening Illnesses, Chronic, Serious, or Life Threatening Illnesses in Children. Veterans - Disability/Injured, Military related, Military wounded. A scholarship for students with disabilities or injuries in need to financial assistance for educational purposes. Program provides scholarships to students who are legally blind and striving to obtain a college education. Program awards scholarships for self-identifying lesbian, gay, bisexual, and transgender/gender non-conforming high school seniors who are pursuing higher education. Program offers scholarships to students diagnosed with clinically significant bilateral hearing loss. $3,000 scholarship to an ROTC student in the Air Force option who is attending a university located in the AFCEA Mid-South Region of the United States, including Louisiana, Mississippi, Alabama, and northwest panhandle of Florida. Kidney and Urology Foundation of America, Inc. Lupus Foundation of America Florida Chapter, Lupus Inspiration Foundation for Excellence (L.I.F.E. Browse by Disease. Program awards scholarship to men with hemophilia or von Willebrand disease, and their immediate family members pursuing higher education. Suite 700 While scientific advances continue for many of these diseases, individuals living with such disorders still encounter obstacles in achieving traditional life milestones. We are inspired by the opportunity presented by the RAREis Scholarship Fund to accelerate the aspirations of adults with rare diseases, and to showcase that the experience of rare disease does not have to limit ones dreams, he added. Program provides a scholarship to undergraduate and graduate college students diagnosed with a heart disease, and enrolled or accepted into an accredited college or university in the US. Two $500 Chinn Scholarships for LGBTQ Atheist Activism that recognize atheist activism in the area of LGBTQ equality. Veterans - Disability/Injured-Families, Victims of 9/11 and/or family member. Program provides scholarships and educational counseling to children of military personnel who have lost a parent in the line of duty. NORD Leads the Way: 900+ Influential Rare Disease Stakeholders from FDA, Patient Organizations, and Industry Gather for #NORDSummit 2023 . Grants provided for children and adults with Cystic Fibrosis for recreational activities that help with physical as well as social and emotional health. Scholarship program to sponsor two students ages 12 to 18 years of age with visual impairment to attend the SCIVIS Space Camp with a fully paid tuition. Program awards a scholarship to high school seniors who use a cochlear Nucleus device pursuing higher education. How it works Now, thanks to the #Rareis scholarship fund, we can help patients not just to live with their disease, but to thrive.. An educational scholarship for students attending a California college/university with a learning disability in math. Scholarships are open to any adult living with a rare disease in the U.S. who is over the age of 17. Scholarships are awarded to spouses, dependent children and grandchildren of blinded veterans or an Active Duty member of the U.S. Armed Forces to assist them with higher education tuition. Program awards hope and inspiration by granting need-based scholarships to high achieving cancer survivors interested in the food service industry. Program provides scholarships to students with a documented language-based disability. Addiction, Substance Abuse, Mental Illnesses. Scholarship award for any current or soon-to-be under grad who has had their life altered due to a bodily injury, be it their own injury, that of a loved one, or an influential individual. Program offers need-based scholarships and educational experiences to high achieving cancer survivors pursuing a music related field of study. Among the many new orphan treatments in 2020, several are particularly noteworthy, including a new drug to treat certain people with Hutchinson-Gilford Progeria Syndrome and . Program provides financial assistance for dependents of victims, or those involved in rescue efforts in terrorist attacks in the 9/11, pursuing post secondary education. Scholarship will be funding students who are blind or visually impaired, ages 10 to 18 years old would like to attend the Space Camp (SCIVIS). Scholarships awarded every year to college bound high school seniors with superior academic and extracurricular achievements who suffer from a chronic disease or other serious challenge to physical or mental health. Program provides scholarships to full-time students who have lost a parent. Program offers scholarships to full-time graduate students with moderate-severe to profound pre-lingual hearing loss. Program awards one-time and recurring scholarships to students who are affected by cancer and are in pursuit of a post secondary education. Program provides fellowships for deaf or hard of hearing students that have been accepted in an accredited graduate program in a college or university. Learning Disability, Dyslexia, Speech and language Delays or Impairments. An opportunity for patient advocacy leaders to improve the health and mental well-being of the rare disease community-including children, siblings, caregivers/care partners and those who are grieving. Program provides a scholarship to high school students that have shown exceptional levels of achievement and are planning to attend college or a university. Bleeding/Clotting Disorders, Hemophilia, Von Willebrand Disease. Program provides financial assistance toward higher education for exceptional students living with cystic fibrosis. Provides scholarships to students with disabilities. Scholarship awards 3 students an individual prize of $3000 to full-time college students diagnosed with low vision. Program awards scholarships to high school seniors with disabilities pursuing higher education. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Educational scholarship is available for students with disabilities that are pursuing undergraduate studies in computer science and related technical fields who demonstrate academic excellence. A membership scholarship to the turner Syndrome Society for women diagnosed with Turner Syndrome. Patients were recruited through the Clinical Analysis and Reporting System (CDARS) using relevant keywords and/or International Classification of Diseases (ICD) codes listed in Additional file 1: Table S1.CDARS is a tool developed by the HK Hospital Authority . Program provides a financial award of up to $1000 annually to a high school senior with a language-related learning difference pursuing a career in the visual arts field. Scholarship offered to an individual or a close family member of an individual who has autism. Program awards kidney/transplant or urology patients, family members or medical caregivers who deserve to be recognized for their courage, strength, determination, generosity of spirit or kindness. Scholarships will be awarded based on the essays, demonstrated leadership, participation in school and community activities, work experience, academic performance, and financial need. Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. Physical Disability, Cognitive Disability. Special Needs, Disability - Physical, Physical Disability, Disability - Mobility, Disability Requiring Assistive Technology, Mobility Disability. that will help to offset the cost of virtually attending NORD's Rare Diseases & Orphan Products Breakthrough Summit. It does not provide medical advice, diagnosis or treatment. A scholarship for youth ages 15 or younger that are diagnosed with down syndrome to assist with costs for educational or recreational opportunities. College scholarship awards for oncology patient or survivor 23 years old or younger who has been registered as a Sunshine Kid for at least 3 months and participated in their programs. The information in this site does not constitute legal advice. Military related, Military wounded, Disabled - Veteran. Program awards scholarships to men and women with hemophilia and an inhibitor seeking higher education. Program provides a one-time scholarship of up to $5000 to individuals living with epilepsy, their family members and caregivers. The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare disorders who are pursuing personal goals through training and education. Program provides scholarships to students surviving breast cancer, or have a parent or guardian surviving breast cancer. Lupus, Systemic Lupus Erythematosus (SLE). Program offers single year and multi year educational scholarships awards to students with cystic fibrosis. Two $2,500 scholarships each year awarded to immediate family members of individuals with Alpha-1 and for individuals with Alpha-1 Antitrypsin Deficiency. Special Needs, Cognitive Disability, Physical Disability. A scholarship for youth ages 15 or younger that are diagnosed with autism to assist with costs for educational or recreational opportunities. Program offers scholarships created to assist students who either have hemophilia or a similar bleeding disorder, or have a family member with a bleeding disorder. Program provides a scholarship to families who have suffered the loss of a parent or primary caretaker. Scholarships for the Outward Bound intervention and educational programs in the wilderness for at-risk and troubled youth and young adults ages 12-21 years old. 7/13/2020 10:57:33 AM . Von Willebrand Disease or rare factor deficiencies pursuing higher education. Program awards scholarships to transplant candidates, recipients, donors, and their immediate family members each year. by Mary Chapman August 19, 2020. We want our community to have an opportunity to pursue their dreams to be teachers, doctors, lawyers, executives, artists, or anything they aspire to be., For the past 11 years we have been working to remove roadblocks for the development of lifesaving treatments and diagnostic opportunities for rare disease patients, she added. Every person who lives with a rare disease is more than just a patient, Julia Jenkins, the foundations executive director, said in a press release. Parent, Family Member, Loved One With Cancer, Brain Cancer/Tumors. Always check with the individual program if you have questions. Bereavement, Military related, Disabled - Veteran. Program offers a scholarship to students with a disability attending the University of Utah. Program offers scholarship for students with hemophilia B and their sibling to pursue higher education. Breast Cancer, Cancer - All in a loved one. Program awards multiple scholarships to Ally members who are legally blind or visually impaired completing undergraduate or graduate degrees. Program awards scholarships to students who are legally blind pursuing higher education. Authors feature an atypical case of COVID-19 presenting with a rare cause of abdominal pain and severe hyperglycemia. The program will provide a one-time scholarship grant of $5,000 to pursue educational enrichment opportunities, including accredited courses, trade programs and two-and four-year degrees. The EveryLife Foundation will manage the scholarship application process, selection process and distribution of funds independent of Horizon input. On Feb. 28, the top of Wells Fargo Tower in downtown Roanoke will be illuminated with a show of pink, green, purple, and blue. All high school, undergraduate and graduate students with an interest in rare diseases are eligible to apply. Program awards a scholarships to men with hemophilia pursuing higher education. Awards will be provided to 32 recipients for the Spring 2021 semester. A scholarship for students who have been diagnosed with lyme disease. Program provides scholarships to students with sickle cell disease who are pursuing higher education. Bereavement, Cancer - All in a loved one, Childhood Cancer. Program offers a scholarship to a high school senior who is hard of hearing and continuing their education. Program offers a scholarship to any current or soon-to-be undergraduate who has had their life changed due to an injury from a car or truck accident. A scholarship to help individuals with the financial funds to attend Indian Trails Camp. Program provides financial assistance to children with a physical or psychological disabilities, or in the autism spectrum to help with child-canine services. Inclusion on this list does not serve as official recognition by the NIH that a disease is rare. Deafness, Hearing Loss, Child with a sibling or parent with a disability. Applicants do not need to be pursuing a degree to be eligible, but they have to be U.S. residents over the age of 17. ), Mesothelioma Cancer Victims Memorial Scholarships, National Center for Learning Disabilities (NCLD), National Collegiate Cancer Foundation (NCCF), National Hemophilia Foundation - Kevin Child Scholarship. Thanks to the support of Horizon Therapeutics, The EveryLife Foundation is pleased to announce its third year of the #RAREis Scholarship Fund, a scholarship dedicated to the rare disease community. Provides academic scholarships to deserving students diagnosed with Tourette Syndrome or Chronic Tic Disorder. Research & Scholarship. Program offers scholarships to adults with ASD who want to pursue a post-secondary education. Scholarships awarded to talented LGBTQ Engineering students in STEM fields pursuing degrees in science, technology, engineering, or mathematics programs. Mary has written extensively for The New York Times, and her work has appeared in publications such as Time, Newsweek, Fortune, and the Chicago Tribune. Diabetes, Diabetes - Type 1, Juvenile Diabetes, Diabetes-Juvenile. Program provides scholarships to students diagnosed with down syndrome seeking higher education or post-secondary classes. This scholarship is for students pursuing a STEM major. The following are scholarships that students with various medical issues can apply for to help them defray the cost of their degrees. Program offers scholarships to students living with Type 1 diabetes. The number of scholarships given varies. Rheumatoid Arthritis, Multiple Sclerosis, Hepatitis C, Crohn's Disease. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Mary graduated from Wayne State University with a degree in journalism. They must be enrolled full time sophomores or juniors at the time of application. Cancers, Parent, Family Member, Loved One With Cancer. Scholarship program created to assist cancer survivors who plan to continue their education in college or vocational school programs. Program awards a scholarship to a person diagnosed with Hemophilia A/B (and symptomatic carriers), Von Willebrand Disease or rare factor deficiencies pursuing higher education. Applicants must accept their award by Friday . Living with a rare disease means facing daily challenges, including frequent doctors visits and rigorous treatment regimens. Provides financial assistance to young adults as they regain momentum in their lives after cancer. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling $5,000 to . This site is strictly a news and information website about the disease. Janet Woodcock, M.D. $2,500 fund to a student with a summer internship in a nonprofit organization that supports direct legal services and/or projects on issues of concern to individuals with HIV or AIDS, anywhere in the country. Program offers scholarship for students with a spinal cord injury who attend or planning to attend University of Utah for undergraduate or graduate studies. Scholarship is for United States students who are for impacted by a hystiocytic disorder. Program provides scholarships for students with heart disease or deformities pursuing higher education. An educational scholarship to full-time undergraduate students at JSU, with a preference to those with a sensory impairment. To support people living with rare disease while navigating obstacles to education, we have partnered with the EveryLife Foundation for Rare Diseases to establish the #RAREis Scholarship Fund. Program provides a scholarship to a high school senior with an identified learning disability pursuing higher education. Military related, Paralysis, Military wounded, Paralysis due to Spinal Cord and/or Brain Injury. Scholarships open to any college-age young person with PKU who is on diet treatment, pursuing an undergraduate studies. Provides scholarships to incoming freshman with type 1 diabetes who are US citizens or permanent residents seeking education at an accredited college, four year university, trade school or technical school. Notify Me Interested in learning about additional scholarship opportunities? This scholarship program is through Sanofi. Mary Chapman Ten grants are awarded to students with Down Syndrome 18 years of age or older. An educational scholarship for students at University of Wisconsin Madison that have a disability. March 15, 2023 - Scholarship Application Window Opens. An educational scholarship for cancer survivors diagnosed at 20 years or younger. Horizon Therapeutics is not responsible for content or availability of third-party sites. Rare Disease Day 2020. Awards a scholarship to students who are manual or power wheelchair users for pursuing higher education. Program provides a scholarship award to a graduating high school senior with a documented learning disability (LD) and/or ADHD who will be enrolled in a full-time bachelors degree program in the fall. A campership for campers who are unable to pay the total cost of a camp experience. This site is strictly a news and information website about the disease. HONcode standard for trustworthy health information: Program provides college scholarships to individuals diagnosed spinal cord injuries, spina bifida, transverse myelitis, neurogenic bladder, or ostomy (ileostomy, colostomy, or urostomy). $5,000 scholarship to high-achieving students who are disabled and enrolled in a accredited college or high school. Offers scholarships to students that have physical and/or mental disabilities. Children with parents or sibling affected by chronic disease are also eligible. Sort by: Name **Filter Feature In Development** Blood Disorders, Cystic Fibrosis, Autism, Hemophilia, Diabetes, Cerebral Palsy, Asperger Syndrome, Dyslexia, Childhood Diseases - Chronic, Attention Disorders, Crohn's Disease, Legg Perthe Disease, Central Auditory Processing Disorder, Bleeding/Clotting Disorders, Lupus, Inflammatory Bowel Disease, Lyme Disease. Provides a limited number of scholarships for community members, veterans and caregivers living with limb loss and limb difference to attend the Amputee Coalition National Conference. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. An educational scholarship for students attending a California college/university with a learning disability. An educational scholarship for the children of military personnel who have been killed or permanently disabled in a combat mission or training accident. Living with a rare disease can create many challenges accessing education shouldnt be one of them. A scholarship for students currently attending a technical program, community college, university, or certification program and have been diagnosed with lupus. A college scholarship awarded to students who are considered legally blind. Scholarship awarded to student seeking higher education who have been affected by cancer, either by their own diagnosis or that of a loved one. Stroke, Spinal Cord Injuries, Paralysis, Spinal Cord Disorders, Neuromuscular Diseases, Parkinson's Disease, Cerebral Palsy, Brain Injury, Neuromuscular Disorders, Spina Bifida, Traumatic Brain Injury. Program provides scholarships to further educational opportunities for children with cancer accepted to accredited collegiate studies. The #RAREis program, which was started by Horizon as a social media campaign to elevate the rare disease community, aims to raise awareness of those living rare disorders. Program provides scholarship to an individual living with vision loss or blindness attending graduate school. Spinal Cord Disorders, Spinal Cord Injuries. In conclusion, this map helps build a foundation for bridging genome biology and medicine and enabling new biomedical discoveries by connecting existing resources and tools across the spectrum of rare and common disease. Educational program provides a college scholarship to teens diagnosed with cancer for future academic success. Cystic Fibrosis, Child with a friend or loved one with a chronic or serious physical illness. Shes won a Society of Professional Journalists award for outstanding reporting. Program offers educational funding for cancer patients and cancer survivors to continue their education. The fund is to be used to subsidize soccer fees and other team expenses. Program offers scholarship to any girl who is motherless for any reason to assist in furthering their education goals. The initial phase of the five-year, $1-million #RAREis Scholarship Fund will include 32 scholarships each totaling . The fund is open to individuals who have been diagnosed with a rare disease. Email: [emailprotected] Scholarship America will manage the scholarship application process, selection process and distribution of funds independent of Horizon Therapeutics input. Cystic Fibrosis, Chronic, Serious or Life Threatening Illnesses. Child with a parent or sibling who has or had cancer. Child with a parent or sibling who has or had cancer, Bereavement. Applicants must plan to enroll full- or part-time in undergraduate or graduate study at an accredited two- or four-year college, university, or vocational or technical trade school next spring. 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